C.A.R.E. …

My book is not intended as an instructional manual, but a true and at times raw story of what it is like living with a family member who has multiple and complex disabilities. I have covered a number of interventions we use, including this one, but real awareness comes from understanding what it means to live with them. I invite you to read my story and share what you learn from it.

I like to share this and other messages of support and essential action periodically to help society understand what to do if we come into contact with someone having a seizure.

They are not monsters, they are not possessed, and they are not to be used as a subject for filming and ridicule. They need you awareness, understanding and support.

CARE is an acronym for basic actions you can take to help them.

C – Comfort

Cushion their head with something soft, to protect them from injury and keep them comfortable

A – Action

Start to time the seizure, and clear the area of anything that might be harmful. You could also check if the person has a medical ID or bracelet with more information on how to help

R – Reassure

When the seizure has stopped, place them in the recovery position, stay with them and reassure them as they come round

E – Emergency

Call Emergency services if:

•  the seizure continues for more than 5 minutes
• the person is not regaining consciousness
• the person goes straight into another seizure
• the person has trouble breathing after the seizure
• the person has never had a seizure before

Thank you.